What the study found
The study found that mothers caring for autistic adolescents in Thiruvananthapuram, Kerala faced increased emotional labor, social isolation, and caregiving demands during the COVID-19 pandemic. It also reports that these mothers used adaptive routines, self-care, and online support networks to cope.
Why the authors say this matters
The authors conclude that systemic reforms are needed to better support these caregivers. The findings indicate that strong support networks matter for maternal well-being.
What the researchers tested
The researchers studied the lived experiences of seven mothers caring for autistic adolescents during the COVID-19 pandemic. They used Bronfenbrenner’s ecological systems theory, family resilience theory, and interpretative phenomenological analysis (a method for examining personal experience) to look at changes in routines, social support, and access to institutions.
What worked and what didn't
According to the findings, adaptive routines, self-care behavior, and online support networks helped mothers cope. The abstract also says that social stigma and insufficient formal support worsened emotional labor, social isolation, and caregiving burden.
What to keep in mind
The study is based on seven mothers in one location, so the findings are limited to this small group. The abstract does not describe additional limitations beyond the scope of the sample and setting.
Key points
- Seven mothers caring for autistic adolescents were interviewed about their experiences during the COVID-19 pandemic.
- The study reports increased emotional labor, social isolation, and caregiving demands.
- Social stigma and insufficient formal support made these challenges worse.
- Mothers used adaptive routines, self-care, and online support networks to cope.
- The authors conclude that systemic reforms are needed to improve support for caregivers.
Disclosure
- Research title:
- Mothers of autistic adolescents reported greater caregiving strain during COVID-19
- Authors:
- Gokul S.
- Institutions:
- Kalasalingam Academy of Research and Education
- Publication date:
- 2026-02-24
- OpenAlex record:
- View
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